Mon, Mar 3, 2014

3/3/2014

Camden is feeling better; getting some strength and appetite back. Clinic this morning went well. His blood counts were good! I caught Cam's cold (completely expected being we have been glued to each other). His seemed short lived, hope mine is too!

**Slight confusion again: his bone marrow biopsy is NEXT Tuesday! Hopefully his body scan will be prior to biopsy (so he does not have to lay on his back for 1 1/2 hrs with 2 sore hips from biopsies). This gives us one more week to keep praying Crusaders...cancer free, cancer free...no evidence of disease please!

Gramma Nanc

3/3/2014 09:14:11 am

yes Lord praying for the words CANCER FREE !!!! also do hope everyone feels better at the Soucy house :) hugs

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Mommy & Me

Mommy

She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?

Mommy thought long and hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

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Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
January 2014
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016

5 years from diagnosis!!
May 9, 2018

5 years from frontline!!
June 9, 2019

IN REMISSION: pending
(waiting for 5 year mark from maintenance).

Benign Tumor: June 2019

Mon, Mar 3, 2014

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