Our schedule has changed a few times, but at this point, the following is our upcoming tests and appointments! This is the anxiety inducing time of treatment where ALL studies are repeated to determine the stage of Camden's disease:
Monday 12/9
-12:30 Audiology for hearing test (praying for no more hearing loss)
-2:30 CT scan of tumor resection and of lungs (praying for no cancer and
healed lungs)
-3:30 MIBG injection for full body scan
Tuesday 12/10
-8:00 MIBG scan which reveals if there is any cancer (excluding minimal
residual disease...which with the Grace of GOD, there isn't any)
-11:00 Pulmonary for follow up on CT scan & for a pulmonary function test
-12:00 Cardiology for ECHO and EKG
-1:00 Clinic appointment for labs and meeting with oncologist (praying for
all good results and news from all above tests).
Wednesday 12/11
HOME DAY!!
Thursday 12/12
-8:30 Arrival for 9:30 operating room for lung and bone marrow biopsy
At this point, Camden's start date for antibody treatment is on hold and more than likely will NOT be the week of Christmas. This next treatment course impacts the child's lungs (great, right...) and typically causes pulmonary edema. Camden is not ready for insult on injury and we will see how next weeks tests go before truly determining the start date for antibody. We will still be delivering movies and blankets to the inpatient children. As always, thank you for your endless support and prayers! We will gladly take all of the prayers we can get next week to get us through these tests and the results! xo