In addition to dilated pupils and blurry vision which we assume is the direct effects from the antibody medication, Camden woke up with headaches in the occipital region (portion of brain that controls vision). So we moved our eye up appointment to 1:50 today. Depending on their findings, we may or may not need a CT Scan of brain; but either way we have a 90 minute Brain MRI tomorrow under anesthesia, looking for any changes....either advanced disease (NO) or a hemorrhage (NO). Im speechless.....I just hate this so much.....better to check it out and be certain he is fine than to worry and drive yourself more and more crazy! Prayer warriors, please surround us....
MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |