[4:00pm] We had a good night last night after the last episode of hives....then we woke this morning with the news that his meds would run over 10 hrs instead of 20.....no sooner than the words were spoken, his hives returned head to toe. We are back to 20 hours. We have been hive free for a few hours and now they are coming back. Benadryl is at 6...so I am going to have to be creative with keeping him calm and entertained for the next 2 hours. 16 more hours! We got this (i hope)
MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
September 2021
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |