​This is one of the most meaningful moments that we have ever shared since our journey with Camden started in March of 2013. This child has endured more than most, but has also shared the journey with many who have traveled similar paths and with those that will forever reside in our hearts. Today, we celebrate REMISSION, not just from Neuroblastoma but also from Giant Cell Tumor. It’s a big deal. It is a DOUBLE REMISSION!! We are blessed. Thank you for your 8.5 years of support, love, prayers, and dedication to Camden’s health & healing. For this milestone, we have certainly prayed.
Camden will continue to undergo surveillance imaging intermittently. We certainly want thank his medical team from CCMC and Boston Children’s, as well as his naturopathic teams, physical therapists, kinesiologist, and even his soccer trainers, who all have kept him strong and focused on success. We have formed relationships that will truly last forever.

Thank you again!
With an abundance of love,
The Soucys

Camden had scans last Thursday we are patiently waiting for the tumor board in Boston to review the images. Unfortunately, his orthopedic oncologist is on vacation until Monday. Please keep us in your thoughts and prayers for good news. 

Camden Update: [warning: long post]
So many of you have been extremely patient, waiting for this update. Thank you for your messages and support, even when we didn't tell you much. We wanted to wait until we knew what was going on, until we have some answers. Once again we were stopped in our tracks. 
We confidently went into this MRI with complete Faith that Camden was well. 
His scan was 2 weeks ago today. We received the results on the Friday following scans. The results were as follows:
1. S2 surgical site of tumor resection: Normal post op changes, surrounding edema resolved. Sent to Boston for surgeons opinion.
2. New area of concern on S1 spine. This presents as a small, 4mm lesion that looks very similar to the S2 lesion that was removed in August. This lesion was NOT on the MRI done in June but WAS there on the MRI done in March. 
3. New area of concern on pubic rami of the pelvis. Large enhancement, measuring 6 cm or roughly 2 1/2 inches. This could be 1 of 2 things: Relapsed Neuroblastoma or a bone/muscle injury. Labs were all normal. We waited for his urine analysis for Neuroblastoma to come back (through the Holiday days off) and those came back normal as well.
The only way to know if these 2 new areas are threatening is to do a PET Scan. Camden has frequent scans and when there is an additional scan that is not on schedule, it has to get approved by insurance. Insurance has 14 days to approve.
MRI results were sent to Boston for review by their tumor board. Camden's oncologist is very thorough. She reached out to the Interventional Radiologist and the orthopedic surgeon at Hartford Hospital. 
Opinions are as follows:
1. The large enhancement is probable sports related injury. Rest and recover. Repeat images in 1 month.
2. The orthopedic specialist did not fully agree that it could be sports injury and suggests on moving forward with obtaining a full body scan. 
3. Boston Tumor Board: We obtained these opinions today and they believe that the S1 lesion and the enhancement on the pubic rami are NOT neuroblastoma or any other tumor. They believe that what is showing on the MRI are areas of stress due to overuse from sports. They report that this is extremely common for young athletes and Camden was immobilized after his surgery in August which really puts him at a greater risk for injury. Boston suggests repeating the MRI in 3 months. 
Ron and I truly rejoice in the positive feedback from these exceptionally skilled physicians. We have reconnected with his oncologist to establish a comfortable plan for scans and within a time that we all agree upon.
So, we are holding on strongly to the fact that Camden is well. Once again, he is our families Christmas miracle. 
https://www.youtube.com/watch?v=cVHrkYBEgFM
Please continue to surround Camden and all of us with your prayers, your positive energy, your love and light and all things related to wellness and healing. 
Thank you. Much love....

Camden and Emma are now back in school.  Yesterday was their first day.  Both of them are in new schools this year.  Camden is in middle school - 6th grade and Emma in 3rd.  Camden is starting this week with shorter days.  He was exhausted yesterday.  We have his follow up appointment tomorrow with the surgeons.  He has developed a small seroma near his incision.  We will see what they have to say about it.  

We had a rough Sunday morning.  Physical Therapy had to clear Camden for discharge home, which meant getting out of bed, walking and managing a flight of stairs *even though sleeping on the 1st floor was an option.  Cam battled through the pain and used me as a resting point as he worked his way up the flight and back down.  Cam had a lot of pain afterwards, which required medication that comfortably put him back to sleep.  That afternoon, we made the decision to venture home from Boston.  

Post-Op Day 1: 8/17/19
Cam was in a good amount of pain last evening. He was/is having muscle spasms at the surgical site (expected but awful). The pain medication (pretty heavily medicated) caused nausea. It required some balancing out of meds and some momma love to get him comfortable without being snowed from meds. With time, he was able to get comfortable and sleep. He went all night without the big gun narcotic (which was probably the culprit of the nausea). He slept great. He wasn’t able to move his body without pain yesterday (even the slightest inch of movement). This morning he was able to roll onto his side a little to show the nurse practitioners his incision [which is dressed with a 💙 shaped dressing]. Today is going to be the day to trial moving more. The spasms continue. He is eating and drinking. My plan is to transition to oral meds, remove the foley and trial sitting [maybe standing, possibly walking???]. If all goes well, hopefully we can head home tomorrow.
To help you to understand what Camden endured in the 7 hour surgery yesterday, I’ve attached a few pictures for an explanation.

Posted by Ron:

Yesterday was full of Pre-Op appointments. They check Cams overall heath and confirm he is physically capable of withstanding the surgery. He did amazing as always. In between appointments he was able to FaceTime with his good friend Chris D. He has the best group of friends. He draws so much strength from them.
Jess had her questions carefully laid out for the surgeon. Sometimes I sit there and smile inside after the 3rd or 4th question. That is when the doctors more often than not casually glance over at the notebook in her hand to find a list of questions. They are often surprised and sometimes caught off guard by how in depth she gets with her questions. There is not a better advocate for their child in the world. Those of you that know Jessica, understand that to be fact. Camden’s initial Oncologist Dr.P always came to our appointments with ample time. If it wasn’t me or Jess, it was Al or my dad with the questions while we were in patient. Noni and Nana were busy making sure their little hero was comfortable and had plenty of tickles or leg rubs. The kid loved having his legs rubbed. As far as the appointment with the surgeon. It went well. There were a few items that were not made completely clear to us prior to today. We walked away with the answers we needed. Camden walked away eager to put this behind him. Not scared or worried. Maybe a little anxious. His primary concern at this point is which soccer cleats he wants. Camden loves his soccer cleats. 
As we drove home we updated our parents. Jessica went over her notes again to ensure we got all of our answers. We stopped at Al and Patrice’s to pick up our little Emma. Emma wanted one thing when we arrived, Camden. That’s all she wanted. To see her brother and make sure he was ok. The impact this entire journey has had on Emma oftentimes gets overlooked. They have such a strong bond. They have their moments like all siblings. They also have moments I’m sure some siblings never experience. Emma is such a caring and loving little girl. It’s going to be very hard on her this weekend knowing that her big brother is going through another surgery. She will handle it with the same grace she always has.
Thank you again for all of your prayers, thoughts, positive vibes and kind words. We will be sure to update everyone Friday. His surgery is slated to begin at 7:30 AM and last 2.5 to 3 hours.