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2015 CCMC Holiday Donations

11/25/2015

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Our donation collection for Connecticut Children's Medical Center begins now. Over the previous years, we have done an AMAZING job with collecting DVDs and slippers. This year Camden has decided that he would like to collect coloring books and crayons. For those of you who worked with Camden at CCMC or anyone else that may recall, we spent a million hours coloring batman pictures, at all hours of the day and night. (There were not enough photocopies in the world to supply Camden with Batman pictures to color). Coloring calmed Camden and it was therapeutic for me too. Lets supply CCMC with many relaxing hours of coloring and artwork.
HAPPY HOLIDAYS 2015! 💌🌲❄️⛄❄️🌲💌
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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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