Camden's Crusade
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4th month appointment (off frontline treatment) DONE

10/21/2014

 

So, I am glad to have had the chance to catch up with Camden's oncologist today. I was able to get many questions answered regarding his recent tests. We ordered some additional blood work and I will be exploring some supplement options (that he approved today) for supporting the healing of sclerotic bone disease in Camden's spine. A fellow momcologist introduced to me organic, whole food supplements that seem to be really good and came recommended to her by her son's naturopath. Cam had to leave two urine samples, had two needle sticks for blood (which was ugly and painful and everyone in clinic heard him screaming) and then he also screamed through a flu shot. We met with our DFMO clinical advisor, hit up the gift shop, and planned on finishing off the last few hours of school. A classmate of Cam's went home with a fever today, which means Cam is blessed to finish off his day doing schoolwork with M-O-M!!!!! No results of anything yet, but I will let you know when I hear something. AND the stye is still red and inflamed. We will continue with moist heat and if it persists, i will take him to the eye doctor for cultures.

Jaclyn Hongo
10/21/2014 04:32:15 am

I'm am one with very bad allergies. I used to get styes all the time when I was younger. There is a save meidicine for it if you call your pediatrican he can prescribe it. Also, we never did it but my Aunt said to take your wedding band and make the sign of the cross over the stye 3 times and it should go away.... Hang in there Cam. I think you deserve something good for supper and Ice Cream for dessert tonight!!!!

Gramma Nanc
10/21/2014 09:39:49 am

Nothing better than eating natural foods :) great for all of us to do !! I feel your pain Cam, i got my flu shot also but we gotta do it !! Prayers that you continue to do Great and stay well !!


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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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