Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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A bad day....

11/6/2013

 

So radiation went well, but clinic took a different course.  We came for a blood transfusion and 15 minutes into it, Camden's oxygen dropped and his heart rate went up.  The transfusion was stopped and clinically he looks fine, but his oxygen saturation is low, requiring him to wear an oxygen mask.  We are getting admitted.  What happened today is extremely rare and when it does happen, the child is typically intubated and in the ICU.  His chest xray revealed lung damage to both lungs, all caused from the transfusion.  Please pray that these symptoms improve and not get worse.  Praying this quickly resolves.

Aunt DonnaI
11/6/2013 06:23:19 am

I am so sorry Jess. Ive got everyone I know praying that his condition improves. He is a strong little man and he will get through this to. We are all sending our love thoughts and prayers to all of you . GOD will not let us down now. We love you very very much and may GOD BLESS YOU and keep you all safe and strong during this frightening time. XXXOOO


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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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