Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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A beautiful Day

1/12/2014

 
Our fantastic weekend hit a few major bumps.  Ron spent all day Saturday in the emergency room and although he needs follow up care, we hope he is soon on his way to a recovery.  Saturday night at the Soucy's was very nice.  It felt really strange being inside someone else's home (as we have been in lock down at ours).  Sunday morning started off great, as we prepared to be at the 8:00 mass for Camden and THEN Emma somehow surprisingly enough got locked into the jeep, nicely and securely fastened in her car seat.  Camden, Nana, and I made it to mass in time, but Daddy, Papa, and Emma had to wait to be rescued by the fire department.  Thank you to the hand full of men who kindly got my beautiful baby out of the locked car (THAT SHOULD NOT HAVE HAPPENED, but it did).  
We were so amazingly happy to see so many of you at church this morning.  It warmed our hearts.  So many of you traveled far to be with us, opposites sides of CT, VT, NYC, etc...we appreciate it so much.  Mass was beautiful.  Camden and I walked the gifts down the isle to the priest and at that very moment when Camden handed the gift of the bread to the priest, rays of sunlight shined through the stain glass windows (the only time it happened throughout the mass).  I did not see this, but many people seated throughout the church did see it.  I prayed for a sign today.  Thank you Jesus and Blessed Mother for being there with us.  We continue to pray for Camden's miracle of a lifetime of health and happiness.  And again, a special thank you for sharing that moment with us.  
and...last, but not least, HAPPY BIRTHDAY DAD (Alan Talamini)....we love you very much!
Gramma Nanc
1/12/2014 06:54:29 pm

Glad all went well sorry i was not able to be there you all were in my thoughts and prayers, God for sure has your family in his hands !! thank you Lord for watching over this wonderful family please continue to hold them tight !!


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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