A great thing to do, with an exceptional cause!!!

8/2/2014

We want to thank Lyman Orchards for their commitment to donate $1 from each admission to the Sunflower Maze to Connecticut Children's Cancer Unit! Lyman Orchards is kicking off the opening of the Sunflower Maze this Sunday at 10am with special appearances by Daniel Tiger of PBS KIDS and children’s author Heather McCutchen Kannam! See the link below for additional details!

www.lymanorchards.com/events/sunflower-maze

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Mommy & Me

Mommy

She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?

Mommy thought long and hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

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Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
January 2014
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016

5 years from diagnosis!!
May 9, 2018

5 years from frontline!!
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IN REMISSION: pending
(waiting for 5 year mark from maintenance).

Benign Tumor: June 2019