Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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a very slow start

8/16/2013

 
So, yesterday was a ridiculously long and frustrating day.  We arrived at clinic at 11:00 am.  I made sure Camden was drinking plenty at home so he met his hydration parameters without question~required prior to starting chemo.  We arrived in our room, ready for chemo maybe 2:30ish or so.  At that point we were informed of him needing a blood transfusion, which is a 4 hour process not including the premedication so say 5 hours.  Then we were informed that despite him meeting hydration, he needed to be hydrated with magnesium, as the chemo medication he will be getting depletes magnesium (which is a 3 hour process).  (an additional 8 hours...with a wasted 3-4 hours just sitting in clinic).  Of course nothing happened too quickly and despite me being in the medical field (trying to understand) and me trying to be patient, I was not.  So fluids ran for 3 hours.  Blood was hung at 9:00 pm.  Chemo didn't start until 3:30 am.  At 3:45 am chemo stopped because his blood pressure was dropping.  A long story short, we finished chemo around 7:00 am this morning.  Yesterday was an extremely long day, but last night even longer.  Chemo has to be hung at the same time everyday....so I already know, I won't sleep this week, as I laid next to him, praying. (not to mention there were blood pressure checks every fifteen minutes during chemo).  My saving grace to last night was God blessing me with a loving and patient nurse *who was running like crazy for us all night!  Without her, I don't think I would have survived.  This means, instead of Thursday being day 1 of chemo, actually today is day 1 and we have extended our stay.  In light of the chaos, we are here, getting what we need for Camden to get better.  He has only vomited a few times yet today, but waiting for the accumulative effect to hit.  Other than that, Camden is in good spirits and doing well.  xoxo
Gramma Nanc
8/16/2013 07:28:38 am

Hope that the process is smooth and fast for Camde from this point , and that you all get needed rest !!!
big hugs & prayers


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    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
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    5 years from diagnosis!!
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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