Just leaving the pediatrician: guess which little love this time...

A. Camden

B. Emma

The answer is A

Diagnosis: Double Ear Infection

Keep it coming winter...you think we can't handle this...well, we can!!!!

Someone tell me it is not true:

4:30 appointment for Camden who has a cough and fevers AGAIN!!!

This is NOTHING is the scheme of things, but still....

I am beyond ecstatic to announce that Camden's urine test (cancer markers) came back early this week. His numbers are truly perfect (the lowest that they ever have been). His blood work was great too! Sending my thank you prayers up into the heavens! Now we wait March 9th and 10th! Thank you all for your continued love, prayers and support!

Can you believe that we just got home....I am totally tired....

Audiology:  Inner ears remain congested.  I was wondering if that would be the case as related to the recent illnesses that Camden has had.  Audiology recommended to repeat the hearing test in 2-3 months and if his eustachian canal remains congested to follow up with ENT.  Oncology says, NOPE....we order an ENT test today and now I am waiting for the appointment date.  His hearing maintains more impaired *like last time...but we bypassed the inner ear canal and did an external exam *behind the ear, and those results are very comparable to the test done last June.  The catch is not only to monitor the regressing hearing for the purpose of hearing aids, but if his hearing worsens beyond a grade III impairment, we have to stop his chemo and wait for his hearing to improve (which it should with this medication he is currently on), but if it doesn't improve: we end our maintenance chemo...which would be very very very upsetting.  So, we are praying that the inner ear congestion remains the culprit to the worsening hearing and this TOO will resolve.  ALTHOUGH, we know that Camden's future is in the hands of the greatest Physician....with whom we trust the most.  Also, we have decided to implement speech therapy very distantly, to ensure that we are not missing anything.

Clinic:  Blood work was "easy squeezey lemon pleasey" as Camden would say.  No ouchies and no tears.  We are waiting for labs results and his urine results will be next Tues.  There remains some congestion in his lungs: left lower lobe *where the pneumonia settled.  Two breathing treatments later, it did improve.  Respiratory trained Camden how to use an inhaler with a spacer for continued respiratory treatments (used sparingly...as a rescue agent).  It will not treat the pneumonia, but it will open his airways.  His oncologist answered all of my questions.   Despite being a long day, we have no complaints.  I am investigating some further alternative treatment options to restore Camden to being a balanced child and also, in conjunction with our social worker, I am seeking out additional support systems for Camden.  All and all...it could always be worse....Thanks for all the <3....

Our day starts at CCMC for our follow up audiology appointment. Praying that the last test revealed decreased hearing due to the head congestion Cam had. It will be a long morning. From audiology we head to clinic. Praying for all perfect news today!

Camden's repeat chest X-ray was negative.  It is believed that the chest sounds that were heard yesterday in clinic was simply the aftermath of the pneumonia resolving.  

9:00pm

Cam went to school today. He was excited to see his teacher and friends. We had a follow up appointment in Farmington with his oncologist this afternoon. He agreed that Cam's lungs still are not clear. He had a repeat chest xray done. The results are not in and hopefully the call will come tomorrow. Praying it is a simple fix.

Camden scored another day at home today.  It feels like it has been such a long time since he has been to school.  I feel that he is continuing to improve daily, but then I also feel like Ron and I have outstanding concerns.  Camden is much more active, he continues to be fever free.  BUT, he also still has this lingering cough.  At times I am hearing him wheeze in his lungs.  I am not certain if he would need further treatment or another prescription.  I called clinic today, but they were closed due to the snow storm.  I will call in the morning and get him in for an appointment.  Is prolonged wheezing from pneumonia normal?  I have no idea.  He also is not eating much.  I feel like he should be starving for not eating a lot of anything for over a week now.  I look over at him and his cute little face...I just pray he has just as many life opportunities as the rest of us.  He is one amazing little boy and we love him so much.  Together, Camden and I will continue to make differences, I know God has a bigger plan for him.