Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Camden's radio interview

2/22/2016

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Tune into radio channel 1080 AM to hear Camden's live radio interview with Coach Cav. He will be talking in a few minutes.

Tune into radio channel 1080 AM to hear Camden's live radio interview with Coach Cav. He will be talking in a few minutes.

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Results are in...

2/12/2016

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Camden's blood and urine results came back normal. We are so grateful for the prayers and support. As we suspected, the results from last month were an artificial high, potentially indicating Neuroblastoma activity. This test is very sensitive and Camden is on a very strict diet 48-72 hours before the test (no citrus, no chocolate/vanilla anything, no coffee or tea (which typically is not a concern). The night before the test, we ate chicken marsala. We now know, after extensive research, that there is an acid in 8 types of edible mushrooms and wine (which is linked to the artificial high for these Neuroblastoma markers). There are several other foods as well that we will be more aware of. Needless to say, the anxiety is always there, but for the next 3 weeks (until the next test) we can come up for air and breathe. Happy Friday! Hope you all have a great Valentine's weekend. Show love to the ones that you love! 💗

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February 08th, 2016

2/8/2016

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We only have a few days to pull this off, but we need your help. We want to send some Valentine's Day cards to the staff on MS8 (Hematology-Oncology floor at Connecticut Children's Medical Center). We want to return the LOVE that they have shown us. Over the next few days we all will be scrambling to get our Valentine's together for our children and their classmates. Perhaps you purchase an extra box this year and allow your children to help. Lets flood MS8 with lots and lots of LOVE. Such a small token of appreciation for all that the staff on MS8 does for so many children on a daily basis.
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Clinic today

2/8/2016

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We have our monthly clinic appointment this afternoon. Camden's blood work last month was good but urine markers came back whacky. Oncology was not overly concerned due to the clear scans. Many external factors (food, exercise, stress) can impact the results. Please join us in prayer that this test reveals normal numbers, indicating a blip last month. These results are the ones that we have to wait several days for. 🙏 Many prayers and much love!

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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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