Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Prayers for Camden

4/24/2019

 
Camden is feeling great. He is active, happy, and loving his sports. He has been alternating his soccer and baseball practices. His first baseball game for this season is tomorrow night. His first outdoor soccer game for the Spring is on Friday. He loves every minute of it and we intend on keeping it that way. 
Just to quickly update you.  In March, on a MRI they found a lesion on Camden's spine.  They reviewed an older MRI from August of 2018 and the lesion was there then too.  The confusion falls with the improvement of scanning technology and as the technology improves, so does the clarity of images.  We did a full body scan on Tuesday.  The following findings have NOT been discussed with Camden.  Ron and I would be happy to answer your questions when Camden is not present. We need him to remain positive, strong, outgoing and devoted to the things that he loves. The scan did show uptake in the area of concern on his spine. WIth that being said, it does not automatically indicate malignancy. There are some benign possibilities that will also have uptake, as all the scan is doing is looking at active processes. Many kiddos who have endured the aggressive treatment that Camden has will down the line end up with benign bone tumors. It is reassuring that the area of concern has NOT grown or changed. It has been 5 weeks since this area was brought to our attention by MRI and it was also seen on comparison studies from 6 months prior. Neuroblastoma is typically a very fast growing cancer, especially recurrent or relapsed. All of his bloodwork and urine markers are in a normal range. We will be speaking with his doctor again today to further discuss options for moving forward with either a very risky and painful biopsy or continued monitoring via scans. His scans are being sent to his oncologist in Boston for further review. We are remaining positive and optimistic that this is just another bump in the road. In the meantime, we ask that you add Camden to your prayer lines and ask that you and your prayer warriors keep praying for him. Camden has already won this war and we are not letting up now.  We are grateful for your love and support. (This photo is a few months old) xoxo💖⚽️🙏🏻💖⚽️🙏🏻
Picture
    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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