We need prayers for guidance with our dilemma/decision for Camden's tumor removal surgery! We thought we were all set, but we have encountered an obstacle. Please pray with us that we make the right decision! Thank you! P.S. Cams white blood count is 0....so remain on lockdown until he has an ability to fight off germs/infection; which also means we still haven't seen our precious Emma! She still has a cough, antibiotics for an ear infection, and low grade fevers. God, we miss her terribly! We pray she feels better too!!
Our home has been converted into a batcave and we took our power boost so we are ready for action...taking on the world! Camden obviously had just 1 Batman medicine and I was stuck with 3 "colored milks".....loving every minute of our day!
Camden is doing exceptionally well and my little Emma bean is sick. Someday we will all be healthy and under the same roof. I am getting anxious for Camden's upcoming body scans, which will either be this week or beginning of next. Surgery for tumor removal is next Thursday. Praying chemo destroyed every cancer cell! We were blessed to meet 2 amazing new friends from the Make-A-Wish Foundation tonight, hoping Camden's wish will come true for him!! xo
Our day was perfect, excluding not being able to risk Emma being home with us because of fevers/illness at daycare! We hope she remains symptom free so she can come home too!! We have to be cautious because his white blood count is low! Good night Crusaders!!
Such a great feeling to be sitting on my couch writing this post! Camden all in all kicked some serious butt this week! He always amazes me, but this time hands down, he is amazing! We had a great day today, but an even better ending! As always, please continue to pray for Camden and his healing! Thank you for your support.....much love <3
Days are going by slowly, 2 more to go! Camden is doing an amazing job. I know you all would be just as proud of him as me and Ron. Treatments are long...one medication runs 24 hrs for 3 days, another is 6 hrs (requiring premedication before and at hour 4 and 8) for 4 days. 3rd chemo med is a slow push through an IV. Camden has developed an amazing tolerance to the hospital setting...my little warrior!! We are thinking more and more about our "make a wish" options, any suggestions? We are certain of our idea, but open to other thoughts! Keep us in your prayers....much love!!
We arrived at our summer vacation home, also known as the children's hospital, to start round 4 of chemo (new meds this time: so praying for nothing but success)! Camden is looking and feeling great! We are going into this round feeling strong! Continue to pray for us! We have repeat scans coming up soon, which will take a close look at how his body is fighting this cancer beast!
Waiting in Pre-Op to have Camden's double lumen Broviac removed! This should be quick and easy. Prayers for a simple procedure in the OR and painless recovery!!
Completely LOVED the sound of Emma and Camden chatting with each other in the back seat of the Jeep today! The absolute best feeling in the world that the 4 of us will be all together under the same roof tonight! So many little things we so often take for granted.
She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?
Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016
5 years from diagnosis!!
May 9, 2018
5 years from frontline!!
June 9, 2019
IN REMISSION: pending
(waiting for 5 year mark from maintenance).
Benign Tumor: June 2019