Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Thank you God and Thank you Crusaders

7/31/2014

 
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Thu, Jul 31, 2014

7/31/2014

 

I "LOVE" sharing good news!!!!! It was a LAB ERROR!!!!!!!! Or better yet, OUR PRAYERS WERE ANSWERED!!!! Today's results were < 150!!!!!!

AMEN!!!!!!  

Prayer Warriors

7/30/2014

 
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The night before any test that could potentially change our future forever, is always an emotional night. Camden's appointment is at 11:40 tomorrow. We will be there around 11:00. Please at that time tomorrow, lift Camden in prayer for nothing but good results. We can do this Crusaders. We have witnessed many miracles in the past 15 months. Where there are 2 or more gathered in prayer....the faith of a mustard seed, seek and you shall find, ask and you shall receive, knock and a door will be opened...

A prayer request

7/29/2014

 

So tonight I send out a prayer request. Camden's lab results from today's clinic appointment all looked good, except for the DDimer (which tells us what his blood clot is doing and his risk for a pulmonary embolism). At diagnosis of the blood clot he was a 407. Since then he has dropped to 202 (which falls within the normal range). While tracking these numbers, we were told it would be alarming if the number exceeded 1,500. Today's lab result was 3,000. We are praying that this is a lab error. He is asymptomatic of any alarming problems. We will redo his labs on Thursday. If the results remain elevated then we will do a repeat Echo. This will allow us to make appropriate treatment decisions. I feel like we have to kick it up a notch with our prayers for Cam. Lets not forget the beast we are fighting against. In conclusion of reading this, I ask that you say a prayer for Camden: for the results to be an error, that Camden's body has completely reabsorbed the blood clot and that Camden will remain in remission for a cancer free lifetime of health and happiness. Please give us an Amen in the comments. Thank you....

July 28th, 2014

7/28/2014

 
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Camden's Celebration

7/20/2014

 
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We had an amazing day. Thank you for sharing in our day. Thank you for surrounding us with so much love and happiness!! Thank you for your support! Thank you with all of our hearts! You would never believe in 1 million years, that I did not take ONE picture yesterday! I guess I was too busy! As pictures start coming in, I will be sure to share them with you!!! Much Love

Sat, Jul 19, 2014

7/19/2014

 

So excited for today! Nothing can take away the joy of seeing Camden and Emma smile. We ended up with 330 registered crusaders. We cannot wait to see you all!! Thank you for choosing to be part of our special day! And the setup begins!!!

Wed, Jul 16, 2014

7/16/2014

 

So Camden's 4 incisions from his line removal surgery are still healing. The incisions themselves look great. The sutures are dissolvable. BUT...there is a knot and small strand of suture on both ends of the incision. His oncologist told me yesterday that the skin will act as scissors and cut that strand and the knot, etc will fall off when completely healed. Today one end looks slightly inflamed and red. Praying it is his body trying to eliminate the "foreign" suture.... Praying it is not a sign of infection. We have had sooo many surgeries and sutures and I never recall those strands sticking out. I put Bacitracin on it....i guess we will see what happens. No infection, no infection, no infection....please and thank you Lord!  

today at clinic (love these kiddos)

7/15/2014

 

These two sure do have their "sibling" moments...but there is no denying their love for each other. I truly believe with all my heart that they will always be best friends!  

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July 13th, 2014

7/13/2014

 
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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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