Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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8/31/2013

 
Picture

Proud mom and dad

8/30/2013

 

Camden did it again.....pulling through with counts reaching 2,896!!!  Thank God!!!  We have an ophthalmologist and dental appointment this afternoon as part of his clearance for the upcoming bone marrow transplant.  My prayers are moving forward for a simple, safe, and mostly importantly a successful surgery to remove his tumor and all surrounding cancer cells!  Also praying for a speedy recovery from surgery!   Thank you everyone for your endless support!!

Counts and Kindergarten

8/29/2013

 
Our day started in clinic with fabulous Melissa (Cam's nurse). Much to our surprise, Camden's ANC is already on the climb from 260 to 650; so he must have hit 0 on Sat/Sun/Mon when we didn't obtain blood counts! At first I panicked that it was out of order, but I am happy and relieved we will obtain our goal of over 1,000 before surgery! 

Day 2 of mommy kindergarten was a blast! We did lesson which I planned around the book "The Rainbow Fish!" We practiced the pledge of allegiance, the days of the week, our lowercase and capital letters, writing on lines, we did an art project, show and tell (lol: Cam's idea).....it was enhanced by the loving presence of Emma, who was a tremendous help ; ) and I now fully understand why 2 year olds are too young for kindergarten...but she did great too!!

My thoughts for the day......

8/28/2013

 
Choose to Love
Rather than Hate

Choose to Smile 
Rather than Frown

Choose to Build 
Rather than Destroy

Choose to Praise 
Rather than Gossip

Choose to Give
Rather than Grasp

Choose to Heal
Rather than Wound

Choose to Forgive 
Rather than Curse

Choose to Pray
Rather than Despair
❤

First day of missed kindergarten

8/28/2013

 

A bittersweet day, I am not sure if I should cry or smile; so I am doing both!  Today should be Camden's first today of kindergarten, but instead we battle cancer....i would give anything for him to be with his friends and new classmates and new teacher!  His first day of mommy school will be today too...supplies are ready and we will be trying to do all the same things!  He will join his friends at some point; but praying for 12+ more years of them being in school together!  Hope all of our little friends have a great day today!  You are in our thoughts!! xo

A GREAT DAY!!!

8/27/2013

 

A great day today!  Thank you Lord for such blessings!  Clinic went smoothly, despite a transfusion for platelets.  His counts are 260, on the drop to 0.  We have one week from today for a recovery >1,000!  We got this!  We have 8 days to recover from surgery for his next scan which will be on Sept 13; which I pray reveals Camden's back and leg to be cancer free!  This is going to be a busy and stressful September, thank you God for being on my side!  xo crusaders!

TGIF

8/23/2013

 

Another good day!  Nausea medications are working and Cam's vomiting has nearly subsided!  His counts dropped from 26,000 to 7,833 today; so hopefully ANC of 0 by our next visit on Tuesday and recovery bound thereafter!  Emma is doing great and loving every minute of being able to play with Camden!  AND Ron and I love EVERY second of having us all together under the same roof!  Hope everyone has a great weekend and throw us a prayer when you think of our superhero!

Please cooperate WBC's

8/22/2013

 

So far our day has been everything I hoped for!  As we made it through round 5 of chemo and are still battling its nasty effects, my mind is moving forward.  Back to the number crunch!  Hoping Camden's white blood cells will quick bottom out and then make a miraculous recovery in time for his surgery!  We have to get our numbers as we cannot afford any more delays! His next scans will be after surgery, which at this point I pray that chemo did its job and the spot on his leg and spine were healed and all other cancer cells are gone!  Count checks again tomorrow, hoping those numbers drop to zero quick, quick and then rebound...

Wed, Aug 21, 2013

8/21/2013

 

A bad morning with Cam feeling really, really yucky....followed by 5 hours in clinic with Cam and Emma.  Camden was able to get his nausea meds in IV form which ensured he wasn't vomiting them up.  Tonight he feels so much better!!! He ate some dinner and played outside for a bit.  He is so amazing, truly!!!  FYI: we always pray to St. Anthony when we lose something, but just yesterday I learned he is also the Saint of Miracles...just adding him to my long list when praying for a healing!

Tue, Aug 20, 2013

8/20/2013

 

We have been home now 24 hrs!  Today was difficult with having a tired, clingy 2 year old and a 5 year old with nausea and vomiting; but we are surviving.  As the days pass, hopefully the nausea and vomiting will too (staying hopeful it will not be 2 weeks this time).  Camden's surgery date has been confirmed for Wednesday, September 4 for his tumor removal!

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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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