So Monday was Emma's first day back in preschool. Cam and I stayed with her a few hours. Camden wanted her to feel safe. He had lunch with her and tucked her in for nap time. We left and picked her up shortly there after. Wednesday was Cam's first day of 1st grade. I stuck around with him day 1 and day 2. Today is the first day both kids are in school all by themselves. I miss them like crazy. I am also so grateful for TODAY!! Thankful that Camden is able to be a kid again. Last year I cried with every back to school picture that my FB friends posted, as Cam rested in a hospital bed, bald and attached to an IV pole pumping chemo into his small innocent body...praying it would kill every cancer cell! Our prayers were answered....so here are OUR back to school pictures!!!!
I am EXHAUSTED! Ron too!!!!! Cam's lab results that came back today looked good. His complete blood count was good. His Sed rate and CRP were within normal limits (inflammation markers). His liver function results are trending down (which is good). Next Monday I will call and get the neuroblastoma marker results. (The important one). The results that tell us about the blood clot are trending down. Thank God!!! Cam says his leg feels better. I bet $100.00 that he was 'nervous' too! Poor little guy!
Emma had her 1st full day back to daycare and Camden starts school tomorrow! We met his teacher today and I am sure that this year will be an excellent one!!
THANK YOU EVERYONE for your prayers and thoughts! You help me get through this journey!!! Much love~
Xray of Camden's left leg was performed and results are negative for bone malformations. Thank you Jesus! We now wait for lab results. Some we will get later today and some will take a week! Thank you Jesus for the good news! Rejoicing and holding onto the fact that Camden is healed!!
We moved Camden's appointment to 9:20 tomorrow morning, which gives us more time to do testing (xray or ultrasound) if indicated!
Tomorrow is Camden's doctor appointment. Currently at 11:30. I spoke with his oncologist today. We will further assess tomorrow. Then we go to Cam's school to meet his teacher. Emma had a great first 4 hrs back in daycare today. Camden and I stayed with her. Cam is such an amazing big brother. He held her hand and sat with her and protected her the entire time. It said, this is hard for me mommy, it is my first day without Emma. I love my kiddos!!!!
Prayers for Camden!!!!
I have been dragging my feet with posting this, but I have to ask for some love and support. Camden woke Thursday morning with complaints of left leg pain. (This is how it all started 3/2013). It stirs up emotions and thoughts that are indescribable. We are trying very hard to be optimistic. Camden did a lot of walking Tuesday at the Red Sox game and Wednesday he played a lot during a playdate with his cousins. I cannot emotionally carry these fears and worries alone. Please lift us in prayer that it is nothing more than muscle soreness. Thank you...
Camden and Ron will be going to FENWAY PARK tonight for the the SOX vs ANGELS game at 7:10. Camden is soooo excited!!! Good times!! Thank you Julie for the tickets! We love you!! Watch for Cam.
We had a really great long weekend away in remote Pennsylvania. We enjoyed our time at my aunt and uncle's house. The kids had a blast! We actually liked having no cellphone service or computers for 4 days! (My reason for no recent posts). Stay tuned for pictures once I get them downloaded!!! Yesterday was Ron's birthday! Our weekend ended last night spending time with his family at our cousin's minor league baseball game!!!! So much fun!!! Go Riley!!! Please God, keep Camden healthy! We love this happiness!!!
(11:00a) No more nose bleeds! Everything is going well. There have been a lot of relapses on the Neuroblastoma support group. (I hate that)! Praying for those children and their families. Praying and praying that God continues to heal Camden so we never have to walk this path again!
She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?
Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016
5 years from diagnosis!!
May 9, 2018
5 years from frontline!!
June 9, 2019
IN REMISSION: pending
(waiting for 5 year mark from maintenance).
Benign Tumor: June 2019