|
I have to start by saying that it really frustrates me that I cannot update this page from my cellphone. i typically copy and paste FB messages from my phone and not being able to do that has really impacted my ease of posting here. Again, I am sorry. I see from the reports that we still have 100's of people checking here daily.
Camden Update: We had clinic and scans last week. The MIBG scan was negative. YAY! By the MIBG results, Camden remains clear of any disease. The CT Scan highlighted 2 areas of concern in his liver. We had a MRI on Thursday night to get a clearer image of what these two areas could be. His urine results for Neuroblastoma markers are completely normal (very low). The MRI results were inconclusive. There are still these two areas in the liver that are being evaluated. His oncologist reports that although the areas are not suspicious for NB, we have not been able to rule out metastatic disease, ((although we suspect it is not)). We will be following up with a liver specialist who will have Camden complete an additional, more specific MRI to look at the arterial vascularity of the liver. This doctor will also determine if further tests (ultrasound, biopsy, or simply monitoring) are recommended. We hope to have an appointment in the books, if not the consultation complete before Thanksgiving. I truly believe that this is just another speed bump and the results will be benign. I am hanging onto the original diagnosis that I thought it was after the CT Scan. (diagnosed by me: Camden's Momcologist). Focal Nodule Hyperplasia. Side note: Ron and I have learned a tremendous amount of information from the NB FB support group. I cannot take the credit for that diagnosis name, but it is in fact very common. I wish there were easier ways to get to the bottom of this...for Camden's sake. There are pros and cons with living under a microscope. It is awesome to have a close eye on Camden, but we will also always know everything about him...things that could be normal will always be a big deal. It is a constant reminder to live life to its fullest. Don't sweat the small stuff. Cancer is evil. God is the ultimate physician. Camden's a superhero. We got this. Keep praying! Bet your bottom dollar, Camden's rolled up with essential oils: healthy liver function and healthy cells....As always, much love and massive amounts of gratitude for your endless support and prayers! |
Mommy & Me
MommyShe's going to keep everyone up to date about my progress. Isn't she the best mommy ever? Archives
December 2019
Diagnosis: May 9, 2013
Surgery: September 2013 Transplant: September 2013 STRICT ISOLATION UNTIL January 2014 Radiation: November 2013 Antibody: January 2014 END OF TREATMENT June 9, 2014 DFMO Trial: June 2014 (27 months of DFMO) **FINISHED ALL TREATMENT JULY 25, 2016 5 years from diagnosis!! May 9, 2018 5 years from frontline!! June 9, 2019 IN REMISSION: pending (waiting for 5 year mark from maintenance). Benign Tumor: June 2019 |
RSS Feed
