Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Tue, Dec 31, 2013

12/31/2013

 

Treatment done: now we just have to rebound from a hand full of side effects!  Today, other than a few bumps, went smoother than yesterday.  I couldn't be more proud of Camden.  He truly is our hero!

Thank you Lord and Blessed Mother for watching over us today....thank you for staying with Cam.  We offer his suffering to you Jesus and we continue to ask for our miracle!

Happy 2014....we hope everyone has a safe and happy night, in addition to a great new year.

Tue, Dec 31, 2013

12/31/2013

 

Day 2: started off rocky...Camden was out of control itchy from head to toe...crawling out of his skin from the pain medication.  He is now much more comfortable from the itching perspective.  We had to start oxygen support much much earlier today.  This is the ABSOLUTE WORST FEELING IN THE WORLD...that no one could ever EVER EVER ever prepare you for!  He is being so brave....so is mom, dad, and nurse...we have an awesome support system here and with ALL of you!!  Keep praying!! xoxo

Mon, Dec 30, 2013

12/30/2013

 

Medication complete, now the aftermath....

Overall, he did well.  Pain medications will continue.  He is fluid overloaded...and we start over in the morning.  Please pray tonight and tomorrow go smoothly!! 

Mon, Dec 30, 2013

12/30/2013

 

I don't know what to say.....other than 1 1/4 hrs left!

6 more hours

12/30/2013

 

Pain is intensifying..we are increasing narcotics...he is so brave....6 more hours

Antibody treatment has begun

12/30/2013

 

Camden's medication has started.  Praying all goes well.  We have a 1:1 nurse today, which we are extremely thankful for!!  This medication is a 10 hour infusion but can take up to 20 hrs if needed.  After 20 hrs the medication will be discarded.  He is sleeping from benedryl.  Vitals signs are stable so far.  9 1/2 more hours to go.  Please Jesus stay with Camden and protect him from any potential reactions.  Please medication attack and destroy any remaining cancer cells!!

Meeting Milestones (again)

12/28/2013

 

CONGRATS Camden....you are 3 months, 4 days old in the world of a bone marrow transplant patient.....AND we made it to Day 95 out of 100 in complete isolation...now lets make it out of cold & flu season....(ugh)....WE LOVE YOU BUDDY!!!!!!!!!!!!!!!!!

Treatment begins....

12/27/2013

 

Clinic went well this morning and Camden kicked butt with letting me give him his shot today.  (Day 1 of 14 days is in the books).  We plan on having a great day and our prayers continue for an easy time next week....

December 26th, 2013

12/26/2013

 
So as the excitement of a very merry Christmas is scattered throughout my house...it is hard to not think about the next step in our journey.  Camden has been such a trooper taking his pain medication 3 times a day in preparation for antibody.  This treatment is the most challenging of all~from what I have been told repetitively.  It is NOT a walk in the park and prior to starting pain medications early, you could hear the children screaming in pain from opposite ends of the hallways.  It will be hard to see him endure these next treatments, but knowing that this is going to save his life....puts a different twist on the situation.  I ask for us to join in prayer that the Good Lord and his beautiful Mother, surround Camden through each moment of our upcoming battle.  That "They" protect him, watch over him so carefully, that they see to it that the medications obliterate all of Camden's remaining cancer but spares his lungs and other organs, making sure Camden's body is strong enough to fight through without complications~which typically will lead the children to the ICU for supportive care.  Please give his nurses and doctors the insight that we know they already have~to notice unwanted events in time for rapid responses.  I ask for Ron and I to have unfailing strength that we can be at his side every second, with the faces of believe, strength, smiles, and courage.  We trust in you Lord, we believe that you will see us through this.  Please crusaders, I know you are there for us...but I ask, please wrap Camden in an armor of faith, love, and healing...in Jesus' name....

Merry Christmas!!!

12/25/2013

 

Merry Christmas Crusaders!  Camden was up until 2:30 am waiting for Santa!  Never again will I wait until Christmas Eve to wrap presents and get organized!  The kids are having a wonderful morning....I cannot help but think of the true meaning of Christmas and we wish Jesus a Happy Birthday!  We have so much to be thankful for and I ask that He continue to heal Camden and protect Camden during this next treatment phase.

We wish all of you a magical day with your loved ones and families!!!

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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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