This is such an exciting doTERRA opportunity that I just CANNOT wait until Jan 1st to post this....Take a look and message me your questions. A special thank you to Dr. Allie Mendelson and to Melody Covino-Watts for making the raffle prizes possible. Also, a thank you to my upline Lisa Ciotto for her amazing leadership skills. Hats off to a great 2015...
Merry Christmas Crusaders! We pray that each and every one of you has a day full of peace, love, and Christmas joy! As always, we appreciate you and thank you for always being here for us! Much love
CLEAR SCANS!!! Wooohooo!!! Now it will be a VERY MERRY CHRISTMAS!!!
Long day #1 is done. We are pretty much ready for bed. Camden had to get 3 IVs today. (right elbow, left elbow, right wrist). Yes, it was ugly. Audiology determined his hearing is worse across the board. BUT it also revealed increased pressure in his Eustachian tubes, could be from his cold or his ears still recovering from plane ride. We retest on Jan 12th. Praying that he doesn't need hearing aides, but that is the least of our problems. Ct scan is done (no results). MIBG injection done for tomorrow mornings scan (8:00am). We are looking for cough drops on a stick....any suggestions? I think i am going to just make them later. We have gone to 4 places and can't find them. Please keep praying for clear scans tomorrow! Talk about the best Christmas present ever!!
We are RELAXING today, after an AMAZING week in DISNEY, thanks to MAKE A WISH, CT. We had the MOST exciting and fun week as a family. I cannot even express how wonderful it was in this small text box. Camden had the time of his life. Stay tuned for pictures. We lost our camera day 1, but replaced it and still ended up with 1,400 pictures, without the ones that were taken at all of the parks. We stayed at the Contemporary Resort (which is wonderfully located right on the monorail~for super easy access to parks). We visited Magic Kingdom (3x), Animal Kingdom, Downtown Disney, Epcot, Hollywood Studios, Legoland, SeaWorld, Universal Studios, and Universal's Island of Adventure. We covered a lot of territory, but we enjoyed EVERYTHING. Our hotel overlooked Magic Kingdom, where we happily watched fireworks every night. Camden is a roller coaster maniac, and a thrill ride adventurist. Man, this kid is brave. He got his mama on them too....for the FIRST time ever. As you all know, I would do anything for him....yup....thank goodness he is still too short for the ones that go upside down. I am not looking forward to those. No regrets on this vacation, (other than my camera tragedy, getting lost once, and the limo company leaving our carseats behind when they picked us up last night). It left us stranded today, but that wasn't a bad thing either.
NOW: we have a few days before scans. Please pray that Camden's scans on Monday and Tuesday are clear. I am trusting and believing that they will be. I do have to say that this vacation was just what we needed and that I am petrified of losing that feeling of normalcy.
Scan schedule: MONDAY: 12:00 we pick up our CT scan contrast. We go to clinic for an IV. 1:00 is audiology to see if his current medications have had any more impact on his hearing. 2:00 is his CT scan. 3:00 we register at Hartford Hospital and 3:30 is his MIBG isotope injection. TUESDAY: MIBG scan 8:00-9:30. Clinic at 10:00 to meet with Cam's oncologist and labs/urine, etc. Please lift us in prayer. Thank you
She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?
Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016
5 years from diagnosis!!
May 9, 2018
5 years from frontline!!
June 9, 2019
IN REMISSION: pending
(waiting for 5 year mark from maintenance).
Benign Tumor: June 2019