Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Surgery:  Boston Children's Hospital 8/16

8/22/2019

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Post-Op Day 1: 8/17/19
Cam was in a good amount of pain last evening. He was/is having muscle spasms at the surgical site (expected but awful). The pain medication (pretty heavily medicated) caused nausea. It required some balancing out of meds and some momma love to get him comfortable without being snowed from meds. With time, he was able to get comfortable and sleep. He went all night without the big gun narcotic (which was probably the culprit of the nausea). He slept great. He wasn’t able to move his body without pain yesterday (even the slightest inch of movement). This morning he was able to roll onto his side a little to show the nurse practitioners his incision [which is dressed with a 💙 shaped dressing]. Today is going to be the day to trial moving more. The spasms continue. He is eating and drinking. My plan is to transition to oral meds, remove the foley and trial sitting [maybe standing, possibly walking???]. If all goes well, hopefully we can head home tomorrow.
To help you to understand what Camden endured in the 7 hour surgery yesterday, I’ve attached a few pictures for an explanation.
Picture
This is the back of our pelvis bone.
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Camden’s tumor was on S2. This portion of bone highlighted in red from bottom of S1 to the top of S3 was permanently removed. Under that bone are the spinal nerves.
Picture
Under these spinal nerves was the tumor that needed to be removed at the region of S2. Neurosurgeon had to carefully work in conjunction with the orthopedic surgeon to first dissect around the nerves to gain access to the tumor and then remove the mass.
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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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