Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Cam's spirits up

10/24/2013

 
I really have been worried about Camden's mood.  The past week has been very challenging with his fears and anxiety over "everything."  HOWEVER, I think that going to our first radiation appointment today really alleviated much of his concerns.  Today, he had a CT scan which will show the area that will be radiated (where the tumor was removed and also the small residual spot of cancer).  Camden tolerated 3 "tattoos"...they inject black ink under his skin as markers for consistent positioning for treatment.  For the cradle:  they had him lay down on a large "bean bag" and used lasers and his tattoo markers for alignment.  Then they "vacuum suctioned" the "bean bag" making it into a firm mold around him.  Radiation is performed at Helen & Harry Gray Cancer Center at Hartford Hospital, so I did see a nurse that I worked with in my years of being an occupational therapist at Hartford Hospital....that was comforting.  His FIRST treatment will be next Thursday.  Praying diligently that Camden stays on schedule with his treatments and that Camden will be completely healed 
Pam Howe
10/24/2013 11:30:26 am

So glad to hear that his mood has shifted, it is so hard. All of what u r posting brings me back to the days of Ian going thru treatment. Is his radiation oncologist Dr. Birch? That was Ian's dr there when he had radiation...I have to say that we were soooo happy with everyone at CCMC and the Harry and Helen Gray Cancer Center..think of you guys all the time...xoxo


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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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