Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Daddy's Message

8/14/2019

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Posted by Ron:

Yesterday was full of Pre-Op appointments. They check Cams overall heath and confirm he is physically capable of withstanding the surgery. He did amazing as always. In between appointments he was able to FaceTime with his good friend Chris D. He has the best group of friends. He draws so much strength from them.
Jess had her questions carefully laid out for the surgeon. Sometimes I sit there and smile inside after the 3rd or 4th question. That is when the doctors more often than not casually glance over at the notebook in her hand to find a list of questions. They are often surprised and sometimes caught off guard by how in depth she gets with her questions. There is not a better advocate for their child in the world. Those of you that know Jessica, understand that to be fact. Camden’s initial Oncologist Dr.P always came to our appointments with ample time. If it wasn’t me or Jess, it was Al or my dad with the questions while we were in patient. Noni and Nana were busy making sure their little hero was comfortable and had plenty of tickles or leg rubs. The kid loved having his legs rubbed. As far as the appointment with the surgeon. It went well. There were a few items that were not made completely clear to us prior to today. We walked away with the answers we needed. Camden walked away eager to put this behind him. Not scared or worried. Maybe a little anxious. His primary concern at this point is which soccer cleats he wants. Camden loves his soccer cleats. 
As we drove home we updated our parents. Jessica went over her notes again to ensure we got all of our answers. We stopped at Al and Patrice’s to pick up our little Emma. Emma wanted one thing when we arrived, Camden. That’s all she wanted. To see her brother and make sure he was ok. The impact this entire journey has had on Emma oftentimes gets overlooked. They have such a strong bond. They have their moments like all siblings. They also have moments I’m sure some siblings never experience. Emma is such a caring and loving little girl. It’s going to be very hard on her this weekend knowing that her big brother is going through another surgery. She will handle it with the same grace she always has.
Thank you again for all of your prayers, thoughts, positive vibes and kind words. We will be sure to update everyone Friday. His surgery is slated to begin at 7:30 AM and last 2.5 to 3 hours.
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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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