Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Day 14

10/8/2013

 

So yesterday was overall a good day.  They decreased Cam's morphine again.  The next step is to stop continuous morphine and only do the PCA pump and from there it will switch to oral medications.  They moved us out of the transplant unit and onto the oncology floor.  Third move/room in 3 weeks...was hoping the next pack and unpack was for home...but the room change is the least of my concerns.  Camden's little body decided to go in and out of low grade fevers all night.  So he was started on 2 antibiotics and blood cultures were sent to check for infection.  Fevers are very common even with negative cultures.  Fever #1 has 24 hours to subside and can be treated with Tylenol.  Blood cultures are sent to check for infection, and he will be on antibiotics for 48 hours.  If a fever spikes again after those initial 24 hours, the cycle starts over again with blood cultures every 24 hours and additional antibiotics for 48....we bought ourselves a longer stay....but the goal is to do whatever it takes to get Camden healthy again!!  He just tried physical therapy, but it didn't go so well.  Still not eating.  ****Praying that little cancer spot is gone after the megadose of chemo and the <5% cancer in his bone marrow is gone after the transplant!!  We still have some recovery time before radiation starts.  Praying, praying, praying.....

***and he threw up his nose tube this morning...again (bummer)!!!

shannon martens
10/8/2013 04:26:12 am

Prayers are being said for you!

Gramma Nanc
10/8/2013 10:32:20 am

Will be sending LOTS of extra Prayers that Camdens recovery takes an up hill climb and you move towards going home very soon !! Please Lord looking for 100% cancer free ! Love to all.:)

Lisa Leighton-Lombardi
10/8/2013 09:05:08 pm

Thoughts and prayers are with you all everyday. Stay Strong.


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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