Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Day 4 finished

4/25/2014

 

INFUSION COMPLETE....

TREATMENT FINISHED!!!!!!!!!!!

Sooooooooooooo happy!!!!!!!!!!!!!!!!

We are weaning the morphine and PLEASE PLEASE PRAY THAT CAM'S SHOT THIS MORNING IS SAFE AND HE IS REACTION FREE!!!!   With mixed feelings I have packed up our room.....821 has been our home away from home for many many months.... We know that it is not a goodbye to our friends and extended family here, but we are forever grateful for the quality care and the relationships we have formed here on the inpatient floor. Thank you MS8!   We are very excited to head back to OUR real home and pack away our suitcases...

Ann Koenig School on Wheels CCMC
4/26/2014 08:23:47 am

Jess, Sorry that I didn't get to say good bye to you and Camden on Friday. I stopped by, but you were busy talking with a nurse, and Cam was sleeping. I pray that all will be well. I hope that you will continue to write your blog to keep everyone "in the loop." I will miss seeing you, and hope that you can now start to rebuild your lives together as a family. Cam, you are my SUPERHERO!!!!!!!!

Gramma Nanc
4/27/2014 04:28:02 am

YEAH !!!! God is good , Camden you are the strongest little guy i know , Prayers that you will be stronger every day with lots of fun spring and summer days ahead :)

Jessica
4/28/2014 10:00:41 am

Ann
Thank you for your message! I am so glad we were able to see you today! There are no goodbyes. You have left an imprint on our hearts. You may have been Camden's tutor, but also our friend! I thank you so very much for all the time you spent with Camden, for all of the moments you went above and beyond for us! In the midst of this terrifying journey, we have been blessed with meeting the most wonderful people; you my dear are most high on the list.....
Until we see you again....
xoxo

Jessica
4/28/2014 10:04:59 am

Gramma Nanc...
We can't wait to see you! It has been WAY too long! Emma was telling one of Camden's nurses about you and Ms. Collette today. She told her that you make her food warm and cold (tooo cute). She misses you! Thank you for your unwavering love and support!!! xoxo


Comments are closed.
    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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