Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Day 6:   God Bless Camden!!

9/30/2013

 
Day 6 has been by far the hardest for Camden. His pain is being managed by continuous morphine. A side effect from the megadose of chemotherapy has left him with mucositis (inflammation of mucus membranes in mouth, throat, and stomach) and also causes sores in these areas. Camden's does not have visible sores, but he cannot open his mouth and is in a lot of pain. We are fully relying on tube feeds for nutrition. Last night he vomited out his NG tube and it had to be removed and replaced. His ANC is 50, still declining to 0...praying his suffering will not last long, as it is painful to watch your child like this, but our strength, courage, religion, and faith prevails and will guide us through and Camden will quickly recover! Please continue to pray for his complete healing! Much love~
Gramma Nanc
9/30/2013 10:33:17 am

Jess sending you big hugs !! nothing worse than watching your sick child !!! God is holding you ALL and will get you thru this .!! Camden, praying that you stay strong as your body heals. . HUGS &PRAYERS

Aunt Donna
10/1/2013 02:02:15 am

I am sending all my love, thoughts and prayers as always and asking GOD to have this awful part of his treatment to go extremely fast so you can all go home together soon. You amaze me with the strength you have through all of this Jess and I am so glad that your faith is stronger than ever through the hardest time that any mother could ever go through. LOL

Debbie Staley - APRN
10/2/2013 12:11:50 am

Everyone at Sutay and Stewart Pediatrics is sending you warm thoughts and best wishes for a speedy recovery. We think of Camden often and are following your blog and keeping up with his progress. KEEP UP THE GOOD WORK - CAMDEN!

Susan gagliardi
10/2/2013 10:18:49 am

I do vigil at my church every wednesday night 8_9pm. I bring up camdens picture on my phone and devote my hour to him. He is the bravest boy i have ever met.


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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