Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Day 8

10/2/2013

 
Day 8: Well, last night was probably the scariest night I have ever had. Camden's secretions were so bad. I had to continuously suction his mouth and hold an oxygen mask to his face the entire night. He was choking on mucous. With Cam never having mucositis before, we did not fully know what to expect...it was BAD! They were doing chest xrays to rule out potential "other" problems. To top it off...he vomited his ng tube AGAIN...requiring ANOTHER xray of his abdomen. AND, he had a red blood cell transfusion and fevers. BUT...Since then, his day today has been much better! I got him in the bathtub again and he has been able to rest throughout the day despite intermittent suctioning. He wasn't able to open his mouth or talk last night and he is today. They upped his morphine for better pain control. His fevers broke! And the GREAT news is that his WBC went from 50 to 60 to 270! They do not calculate ANC until his WBC is 300....so hopefully tomorrow we will be over 300...and praying tomorrow we will have an ANC of something/anything!!! We need an ANC of 500 for 3 days for discharge! Feeling thankful symptoms started late and hopefully are short lived! I am so proud of my boy!!!! Thank you Jesus for getting us through another battle!
Gramma Nanc
10/2/2013 07:31:12 am

Thank you God for watching over Camden , Praying that we are now on the up hill climb for Great numbers and healthy days !! Camden you are the bravest boy i know , keep up the Super Hero fight you got this !!!! Lv & Big Hugs :)


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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