Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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December 11th, 2014

12/11/2014

 
We are RELAXING today, after an AMAZING week in DISNEY, thanks to MAKE A WISH, CT. We had the MOST exciting and fun week as a family. I cannot even express how wonderful it was in this small text box. Camden had the time of his life. Stay tuned for pictures. We lost our camera day 1, but replaced it and still ended up with 1,400 pictures, without the ones that were taken at all of the parks. We stayed at the Contemporary Resort (which is wonderfully located right on the monorail~for super easy access to parks). We visited Magic Kingdom (3x), Animal Kingdom, Downtown Disney, Epcot, Hollywood Studios, Legoland, SeaWorld, Universal Studios, and Universal's Island of Adventure. We covered a lot of territory, but we enjoyed EVERYTHING. Our hotel overlooked Magic Kingdom, where we happily watched fireworks every night. Camden is a roller coaster maniac, and a thrill ride adventurist. Man, this kid is brave. He got his mama on them too....for the FIRST time ever. As you all know, I would do anything for him....yup....thank goodness he is still too short for the ones that go upside down. I am not looking forward to those. No regrets on this vacation, (other than my camera tragedy, getting lost once, and the limo company leaving our carseats behind when they picked us up last night). It left us stranded today, but that wasn't a bad thing either.  
NOW: we have a few days before scans. Please pray that Camden's scans on Monday and Tuesday are clear. I am trusting and believing that they will be. I do have to say that this vacation was just what we needed and that I am petrified of losing that feeling of normalcy.  
Scan schedule: MONDAY: 12:00 we pick up our CT scan contrast. We go to clinic for an IV. 1:00 is audiology to see if his current medications have had any more impact on his hearing. 2:00 is his CT scan. 3:00 we register at Hartford Hospital and 3:30 is his MIBG isotope injection. TUESDAY: MIBG scan 8:00-9:30. Clinic at 10:00 to meet with Cam's oncologist and labs/urine, etc. Please lift us in prayer. Thank you

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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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