Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Discharge

5/27/2013

 
We were hopeful for our initial plan of returning home tomorrow! Camden is off tube feeds, eating pretty well, off a lot of medications, walking much better and overall feeling much better! However, discharge has been postponed because his white blood count is very dangerously low....we will remain here until his count elevates and we are safe to return home. My gutt tells me we might be here until cycle 2 of chemo (i hope not). But with that being said, great effects from chemo cycle 1 and it is working just as it should!
Lori Parrow
5/27/2013 04:31:53 am

Prayers and hugs! All sent with love!!!! <3

Julie Monico
5/27/2013 05:22:28 am

Keep up the good work little man!!! Sending positive thoughts, prayers, and lots of hugs and kisses!!! Xoxoxo

Mary Anne Culhane
5/27/2013 09:50:46 am

I am sorry you're not going home today but so glad to hear Camden is getting a good response to the chemo! Great job Man of Steel!

Yeny
5/27/2013 11:17:27 am

I send you lots love and positive prayer your way!

eny gomez
5/28/2013 03:46:17 am

Iam sorry to hear about your little guy..iam praying hard for him and your family...i wish you the BEST! :-)


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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