Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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February 02nd, 2015

2/2/2015

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Camden scored another day at home today.  It feels like it has been such a long time since he has been to school.  I feel that he is continuing to improve daily, but then I also feel like Ron and I have outstanding concerns.  Camden is much more active, he continues to be fever free.  BUT, he also still has this lingering cough.  At times I am hearing him wheeze in his lungs.  I am not certain if he would need further treatment or another prescription.  I called clinic today, but they were closed due to the snow storm.  I will call in the morning and get him in for an appointment.  Is prolonged wheezing from pneumonia normal?  I have no idea.  He also is not eating much.  I feel like he should be starving for not eating a lot of anything for over a week now.  I look over at him and his cute little face...I just pray he has just as many life opportunities as the rest of us.  He is one amazing little boy and we love him so much.  Together, Camden and I will continue to make differences, I know God has a bigger plan for him.    
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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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