First day of missed kindergarten

8/28/2013

A bittersweet day, I am not sure if I should cry or smile; so I am doing both! Today should be Camden's first today of kindergarten, but instead we battle cancer....i would give anything for him to be with his friends and new classmates and new teacher! His first day of mommy school will be today too...supplies are ready and we will be trying to do all the same things! He will join his friends at some point; but praying for 12+ more years of them being in school together! Hope all of our little friends have a great day today! You are in our thoughts!! xo

Gramma Nanc

8/28/2013 07:38:12 am

You bet Jess!! a long, long life of many more first days ,and lots of great things to come !! hang tough Camden ! and as always sending lots of love and prayers !!

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Mommy & Me

Mommy

She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?

Mommy thought long and hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

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Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
January 2014
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016

5 years from diagnosis!!
May 9, 2018

5 years from frontline!!
June 9, 2019

IN REMISSION: pending
(waiting for 5 year mark from maintenance).

Benign Tumor: June 2019