Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Fri, Sep 20, 2013

9/20/2013

 
Boston Children's Hospital has a program called dec-a-room where transplant kids get to decorate their rooms however they choose!  We gave suggestions of what Cam likes and they shop and provide the items!  Camden and Mom colored Scooby and friends on his window the other night, it took us about 3 hours, but we had a blast doing it!!  Another good day today!  Chemo day 3 in the books...1 more day of this particular medication and then 1 day of a different chemo.  We were told day 0 when he gets his stem cells is considered a birthday!  Cam's new birthday is Tuesday, September 24!

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Gramma Nanc
9/20/2013 10:22:17 am

Cam you look super !! and what a great job you both did on the room , we all will be looking foward to your september 24th birthday celebration the start of you getting healthy and strong !! prayers and tight hugs :)

ann koenig CCMC
9/20/2013 09:51:19 pm

LOVE IT!!!!!!

Aunt Donna
9/21/2013 03:29:47 am

I love seeing that little grin on your handsome face Camden. I can't believe that our family has 2 of the best artists in the world. Your windows are awesome. How nice of Boston to give you whatever you need to help pass the time away. Those windows are beautiful and all the other kids can come and enjoy looking at them to. Keep up the good work!!!! Our love, thoughts and prayers are with you and hoping that the rest of the chemo treatments go as well as the first ones. Love you all. XXXOOO


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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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