Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Fri, Sep 6, 2013

9/6/2013

 

Good morning!  We made it to the oncology floor late last night.  Camden is going well.  3 tubes came out, 3 more to go.  He is comfortable if he is not moving, but as you can imagine he has pain with sitting up and rolling.  Surgery's goal for today is to see him out of bed.  (Side note: his ANC is 9,500....Good Job Cam!!)

Donna parrow
9/5/2013 11:43:14 pm

so happy to hear he is out of ICU and that he is resting as much as possible. Praying that his pain is minimal and he is able to walk a little today. We love you all very much and hope you and Ron are getting some rest when Camden does. Everyone is asking and praying for all of you. XXXOOO

ann koenig - school on wheels ccmc
9/6/2013 05:12:26 am

I anxiously read your daily updates. I think of all of you, and continue to pray for you....Just remember, "God gives special children to special people." You are an incredible family. Camden, I miss hanging out with you...keep getting better each day.


Comments are closed.
    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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