Good Morning Crusaders

1/6/2014

So I have been consumed by a neuroblastoma support group that I joined. It is amazing (and extremely sad) to see how many others are walking in our shoes and feeling our pain, BUT terrifying to see how many beautiful children who lose their battle against this nasty cancer. I have learned some great things but will scan what I read too. I have made it this far with the love and support from my crusaders....and I am counting on you all to get me through ?? June 2019....

Camden has belly, leg, and neck pain. It comes and goes throughout the day and we often carry him to and from...his appetite is slowing coming back. He has a lot of daily meds and tomorrow we start 2 more pills in the AM and 2 in the PM. Pill swallowing hasn't been going so well....BUT this new pill is PERTINENT that he takes...we need to kill these cancer cells!!

Prayers for Camden's aches and pains to subside, prayers for successful pill swallowing, and as always our expected complete healing! Lord, hear our prayers!!

Gramma Nanc

1/6/2014 08:28:30 am

Camden you got this !! Prayers for you that ALL cancer cells and all pain will be gone !! Lv ya lots buddy

Tara

1/6/2014 10:18:00 am

We are here for the duration!! Count on it :-) Camden, you are doing so well. You keep getting your rest whenever you can, so that you and your body have the strength to show this nasty Neuroblastoma who's boss! We are all praying for you and wish we could give you a great big hug and take your pain away. But for now, while you battle this "bully," we will settle for looking at all the pictures your mom posts until we can hug you, give you high fives and dance around the room in celebration! Just remember, while Mom and Dad carry you around the house, we carry you in our hearts and just like it says in "Footprints," Jesus is carrying you, too. We are praying and rooting for you! You got this, SuperCam!!

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Mommy & Me

Mommy

She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?

Mommy thought long and hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

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Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
January 2014
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016

5 years from diagnosis!!
May 9, 2018

5 years from frontline!!
June 9, 2019

IN REMISSION: pending
(waiting for 5 year mark from maintenance).

Benign Tumor: June 2019