Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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January 07th, 2014

1/7/2014

 
This Sunday, the 8:00 am mass at St. Edward's Church in Stafford Springs will be dedicated to Camden; as we gather in prayer for Camden's complete healing.  We hope to fill the church with healing prayers, love, support, and extraordinary strength for all of us to conquer these next challenges.  This will be our first "outing" in public and however nerve racking for us to expose Camden to so many people, we feel we will be fully protected by the grace of God.  Please understand, our visitation/socialization will be extremely limited, so please, please do not take it personal...but just knowing we are surrounded by our family and friends will be overwhelmingly comforting for all of us.

Today was a great day...my dad drove us into clinic for a 9:00 am appointment, in every effort for us to arrive safely while traveling the icy roads in Tolland.  Camden's blood counts were awesome and we dodged a blood transfusion.  His aches and pains, lethargy, etc.. are completely normal with respect to the marathon his body ran last week.  We are battling the 6 pills a day and the 3 liquid medications and the 1 shot a day and the 4x line flushes, (in addition to routine cap changes and dressing changes)....we have a full plate just to get through the day taking meds and doing our nursing care...but as you all know...CAMDEN ROCKS and he is such a trooper.  

We continuously thank you for your support and we hope that all of you had a happy, safe, and great day today too!!!
Gramma Nanc
1/8/2014 06:44:09 am

Jess Ron Camden &Emma you will be that day and are everyday surronded with lots of Love &Prayers !! Camden it is a tough fight but you are Super Strong !!!
Lv ya all lots :)

Cynthia Siena
1/9/2014 08:35:47 pm

Our prayers are with you and your family.


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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