January 16th, 2015

1/16/2015

Today was a fun day. I was able to get some work done this morning. Camden left school early due to two children in his class being sick, one with a fever and the other with strep throat. We are all home and safe. Waiting for the UCONN men's hockey game to be on TV tonight, NBCSN at 7:35. The team is in Indiana at Notre Dame. Cam taught one of the players a victory dance for him to do after he scores. Now he HAS to score tonight. (haha). Hope everyone has a great weekend!!

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Mommy

She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?

Mommy thought long and hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

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Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
January 2014
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016

5 years from diagnosis!!
May 9, 2018

5 years from frontline!!
June 9, 2019

IN REMISSION: pending
(waiting for 5 year mark from maintenance).

Benign Tumor: June 2019