Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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June 29th, 2016

6/29/2016

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Yesterday, Camden had his monthly clinic appointment.  As always, he had his blood drawn and had to leave 2 urine samples.  Now we sit and patiently wait for the results.  Camden's will take his last DFMO pills on July 24th.  We are glad to announce that we will not have to finish this treatment in Massachusetts, as CCMC was able to continue this trial with another oncologist in place of Dr. Parikh.  I am anxious to see how quickly Camden's hair and eyelashes will start growing in again.  Do you remember how often we had to follow audiology due to the hearing loss associated with this treatment?  Well, we will start seeing them again to monitor his hearing upon completion of this trial.  I have to ramp up my use of Frankincense around his ears. 
We met with his new oncologist.  She was wonderful.  I am investigating getting Camden into another trial and will keep you posted with the outcomes of that. 
Body scans will be the end of July and will be repeated every 3 months following for the next 2 years.  We will also continue with cardiology and pulmonary follow ups.

We all are looking forward to a great summer.  Hoping that you all enjoy it too.
Thank you for the support.
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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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