Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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May 17th, 2014

5/17/2014

 
Sorry that it has been a few days since the last message from me.  Things are going well.  Camden's birthday is just around the corner...I cannot believe that he is going to be "6" years old.  I have been super busy trying to get activities for us for the July 19th party....HOPE TO SEE YOU ALL THERE!!  It is coming along very nicely, we are EXTREMELY excited!  I have been in contact with Camden's school and he will be finishing off the last month of school with his class.  We are very excited for this as well.  I praise God that he has carried us to this point, where returning to normalcy feels like such a blessing.  Camden is on a BREAK from ALL medications.  It is absolutely crazy that he is not getting ANYTHING right now.  I am only doing his line care and dressing changes.  Next week starts ROUND 6 of 6 with chemo pills at home.  I cannot even express in words how thankful I am for the outcome of this past year and I pray that our future is very, very bright.  Camden was our miracle at birth and we are praying for a lifetime of miracles for this boy of ours.  We hope everyone has a great weekend! xoxo

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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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