Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Mon, Jun 23, 2014

6/23/2014

 

(6p) As I prepare my list of questions (2 pages) for clinic tomorrow, I cannot help but know that we will most definitely get through this blood clot crisis! Praying the clot stays away from his coronary artery and we avoid the risk of a heart attack, praying it does not go to his lungs and we avoid a pulmonary embolism. Praying it never makes it to the brain and we can completely rule out a TIA/CVA. The internet is a double edge sword...it gives you information to help you formulate questions and it can completely scare you. I have protected and supported Camden and I have no doubt that his oncologist will answer my questions before I even ask them, but at this point...my gut feeling is that the lines stay in place until the clot is reabsorbed some and can safely be removed. I think the clot is too big to come out with the line. Anyone have any input on this?


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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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