Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Mon, Sep 22, 2014

9/22/2014

 

Today, our day got shuffled and although things did not go as planned, we made it through. This morning I received a phone call from the Hartford Hospital pharmacy that the MIBG isotope did not make it in from Canada. So this injection will be tomorrow, moving his scan to Wednesday. We changed our clinic appointment to today instead of tomorrow and we had his ECHO today instead of Wednesday. So blood work is done and pending. Urine analysis was sent and pending. His CT scan of head, chest, abdomen and pelvis was completed. We are waiting on the CT results.   The ECHO revealed that the large "gumball" size blood clot in his heart is GONE!!! Cardiology wants to follow up again in 3 months. We are waiting to hear from his oncologist about whether or not to proceed with or discontinue the Lovenox injections. The schedule is: Tomorrow: only the MIBG injection and pick up his pills for the next 3 months.

Wednesday: 8 am MIBG SCAN!

Please continue to pray for NED (No Evidence of Disease)


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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