Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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November 26th, 2013

11/26/2013

 
Our CT scan results of Camden's chest remain inconclusive.  It showed 2 potential etiologies for the reason that Camden has been experiencing shortness of breath, low oxygen saturations, and increased heart rate.  The waters are muddy and I have been cautious in expressing the potential diagnoses, but at this point in time, there is nothing to hide and protect him from, as we continue to need your prayers daily.  There is a very serious and life threatening diagnosis called pulmonary VOD (venous occlusive disease).  This is a progressive disease with no cure and could potentially lead to a lung transplant.  These conditions with his lungs and heart stem from the chemotherapy medications that he had at such a high intensity in such a short period of time.  Evidence also points to potential pulmonary hypertension.  Again, further testing is required to pinpoint what exactly is taking place inside his small, innocent body.  Next Tuesday Camden will undergo anesthesia again and have a bronchoscopy and another procedure where they aspirate lung secretions for cultures.  If the bronch and the cultures remain inconclusive then we are approaching a lung biopsy.  In the meantime, they have ordered us home oxygen for him to use with activity and to wear at night.  Also, they have started him on an antibiotic with our every hope that it is an infection that is causing temporary havoc in his lungs.   Camden graduated from radiation today.  The radiation team was fabulous and we truly appreciate the daily TLC that was received from Kylie and Mike and if you are out there reading this, we apologize for being a wreck today, but please know how important your daily care was to us.  You both are special people and we will for sure visit time and again.  Crusaders, our journey continues.  
Addendum: and his hemoglobin and platelets are low, requiring us to have them rechecked on Friday, which means 2 pending transfusions... 
Aunt Donna
11/26/2013 06:32:05 am

Mom just called me with todays news. I am so sorry you had to hear all of this but we are going to pray even more for our MIRACLE.. I will be at the feet of JESUS praying for him as soon as I am done sending my love and prayers to you. I can't even imagine what you are going through but know that we all are feeling your pain and sorrow and will not let you down. We will continue Camden's Crusade with our love and prayers for a complete healing. Stay strong my beautiful niece. I love you very, very much.

Kylie
11/26/2013 09:19:03 am

I love this website you guys it is amazing! I am so glad that Cam finished radiation today it is one less thing you will have on your plate now. He did so great and was perfect the entire time! He is such a great kid and I am honored to have had the pleasure of meeting him and the rest of the family you are truly great people!
I will continue to keep you all in my thoughts and prayers and send nothing but positive vibes your way! Please come visit when you can I would love to see you guys! If you need anything you now have my email do not hesitate please!
I love the updates via this website and will definitely be checking in often to read up!
<3 always Kylie

Gramma Nanc
11/26/2013 10:43:01 am

Jess, Ron Camden ,another bump in the road but stay strong i know God will continue to carry you all thru this extra Prayers being sent to all of you with much love :)

ms8 staff..allll of us!
11/27/2013 02:40:16 am

Hi Jess, Ron, Cam and Emma...Just wanted to let you all know you are ALL in our thoughts and prayers..today and everyday! We love you Cam! From all your friends on MS8:)

Alicia Corsini
11/27/2013 11:52:36 am

Changed my prayers from "help Camden beat cancer" to please help Camden to be healthy. My love to each of you


Comments are closed.
    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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