November 26th, 2013

Our CT scan results of Camden's chest remain inconclusive.  It showed 2 potential etiologies for the reason that Camden has been experiencing shortness of breath, low oxygen saturations, and increased heart rate.  The waters are muddy and I have been cautious in expressing the potential diagnoses, but at this point in time, there is nothing to hide and protect him from, as we continue to need your prayers daily.  There is a very serious and life threatening diagnosis called pulmonary VOD (venous occlusive disease).  This is a progressive disease with no cure and could potentially lead to a lung transplant.  These conditions with his lungs and heart stem from the chemotherapy medications that he had at such a high intensity in such a short period of time.  Evidence also points to potential pulmonary hypertension.  Again, further testing is required to pinpoint what exactly is taking place inside his small, innocent body.  Next Tuesday Camden will undergo anesthesia again and have a bronchoscopy and another procedure where they aspirate lung secretions for cultures.  If the bronch and the cultures remain inconclusive then we are approaching a lung biopsy.  In the meantime, they have ordered us home oxygen for him to use with activity and to wear at night.  Also, they have started him on an antibiotic with our every hope that it is an infection that is causing temporary havoc in his lungs.   Camden graduated from radiation today.  The radiation team was fabulous and we truly appreciate the daily TLC that was received from Kylie and Mike and if you are out there reading this, we apologize for being a wreck today, but please know how important your daily care was to us.  You both are special people and we will for sure visit time and again.  Crusaders, our journey continues.  
Addendum: and his hemoglobin and platelets are low, requiring us to have them rechecked on Friday, which means 2 pending transfusions...