Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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OUR BOY....

1/6/2017

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Camden is doing awesome.  He is growing and maturing everyday.  (you guys, I can rest my chin on the top of his head when we are both standing).  Our miracle boy.  How we love him so!   Saturday starts his indoor soccer program again.  We are looking forward to seeing him back out on the field.  Cam is doing great in school.  His new found love is Pokemon (which I am sure parents with children his age are facing the same).  

Our Christmas was perfect.  We carried on with our tradition of going to my parents house and Ron's parents house.  There is no better feeling in the world than being surrounded by those who love you the most.  We are very thankful and we remain complete.    

Cam is still going strong with UCONN hockey.  I cannot explain how much Camden and Emma love these guys.  They have such a profound impact on them.  We have been fortunate to spend some quality time with them most recently.  I will be better at sharing pictures.  

Camden's next scans are in February.  This month is the first time EVER that we skipped a clinic appointment for routine labs.  WHOA!!!!  It feels weird.  It scares me, but with prayers, we get by.  He is healed...there is no turning back.  

We really hope that everyone had a wonderful holiday.  2017....such a large number!!  I just can't believe it.  Cheers to a FABULOUS 2017....with love, family, health and many new miracles.  
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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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