Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Our Boy....

2/5/2018

 
It has been a long time. You guys, Camden is getting so big. I wanted to share with you that he got braces on Friday. To many, its just braces. To me: it is another milestone. Braces to correct ADULT teeth. I look at his face and just melt. I am so proud of the young man he is. I also think of you guys every single time scans start sneaking around the corner. That scan-xiety is still there. Its real. I think of you...because it is YOU that held me/us up and kept me/us from falling during so many of Camden's battles/obstacles. I am sorry that these posts come in times of need. Scans are just a confirmation of what we already know. He is a living miracle. He is healthy. Claim it with me.

When we aren't here posting, it is because we are maximizing our blessings and life's gifts, enjoying our family time, building memories, teaching lessons, and growing from our mistakes. Camden's scans are next week. 3 days of hospital visits: Tuesday/Wednesday/Thursday. His big body scans are on Valentines Day. Send Camden some love that morning. (I know you will). He will be in scans at 8 am.

AND....his braces are gold. YUP gold. It took a lot of convincing but I gave in. He is ready for any rap video. Who wants to make a Camden rap video? He did promise that this would be the only time he gets any gold accessories put in his mouth. Oh well...don't sweat the small stuff. He's got a cute face either way. One more round of 6 month scans and then we graduate to 1 scan, ONCE a year? Did I hear myself say that? Thank God!!!
ann koenig
2/6/2018 07:39:44 am

I've been checking the sight for updates.......glad I saw this one, sending happy prayers for the scan dates.
Hoping for a Happy Valentine's day

Ann Koenig
School on WheelsTeacher
CCMC


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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