Camden's Crusade
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prayers

10/26/2014

1 Comment

 
I have so much to say this morning:  I am going to try to keep it brief.  
~Camden's eyes are better, the swelling from the styes have subsided.  I pray that he will not get anymore.
~We had a great day yesterday at our princess warrior Quinn's end of treatment party.  Please keep Quinn in your prayers, as she still have a few chemo's left.  The party was amazing.  Cam signed a monster truck (dedicated to those fighting cancer), he met and received an autographed picture and baseball from retired Red Sox pitcher, Dennis Oil Can Boyd.  The kids had a blast: there was a whole lot of love there yesterday!!!!
~Uconn Men's Ice Hockey played in VT last night, even though we weren't there, we streamed the game to Ron's parents TV, had nachos, and cheered them on from home.  The kids were screaming out LETS GO UCONN and screaming out the guys names.  It was cute.  The bad news is that we didn't win.  BUT, we will!!!!
~Last night I could not sleep:  the knots in my stomach kept me up ALL NIGHT!  Several posts ago, I commented on how I was praying for those families who know that their time is limited with their child.  Last night, we lost another warrior.  Please extend your prayers to Dante, who is flying high and his family who is currently heartbroken.  AND, another warrior:  who I spoke of in the same post, whose mother introduced to me the supplement for Camden, they discovered that their son, Landon, has relapsed in his bone marrow.  His scans 5 weeks ago were clear.  Please pray that Landon will endure the upcoming treatments and reach a lifetime of NED.  
~PLEASE, we all know how strong Camden is, and how we have been blessed through this unbelievably difficult journey, but lets up our prayers that we will continue to only hurdle these little things, (styes, blood clots, etc).  I am staying focused and believing that we will continue to be seen through this.  Camden's cancer is HIGH RISK, meaning, he is at a HIGH RISK for relapse.  Statistically, the duration were most kids relapse is up to 18 months after treatment.  In those 18 months, months 6-12 after treatment is the highest of highs.  We just had his month 4 appointment and on Dec 15th and 16th, we will be having his 6 month scans.  December through June....we have to turn things up....I am counting on you to help me through this.  
1 Comment
Gramma Nanc
10/26/2014 08:45:57 am

Amen !!!! God WILL continue to Bless and be with ALL of you !!! :) Prayers never stop !

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    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
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    5 years from diagnosis!!
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    5 years from frontline!! 
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    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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