Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Sat, Jun 7, 2014

6/7/2014

 

Camden had a great 1st week of school! A special thank you to my Aunt Donna and my mom for watching Emma for me so I could be with Camden (a big transition for both of us)! Now: my prayer request.....

There is a strike going on with the companies who provide the MIBG isotope. This is what is used for the MIBG body scans and also MIBG chemotherapy. Due to this strike, the children who need their body scans...cannot get the scan and/or those who are actively battling this nasty and aggressive cancer are not allowed to have their treatments. This makes me completely sick to my stomach. I do not know the reason for the strike (which may make a difference in my opinion), but I do know how difficult it is to have a child with cancer. I hope there is a resolution soon! Camden is scheduled for his isotope injection on Monday, June 16th (and a CT Scan) and his body scan on Tuesday, June 17th. He will also endure another bone marrow biopsy in both hips on the 17th. With that being said, please pray with us that he remains NED! God has carried us this far, please see us through to a complete remission and a lifetime of cancer free!


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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