Sun, Jan 19, 2014

1/19/2014

And we need transfusion ....BUMMER... At least it will be done today and not interfere with treatment tomorrow! We moved right into our suite...refrigerator, food, XBox, blankets, Jesus, and a whole lot of love....

Thank you to Keith Binette, Karen Warren Binette, Michelle Buccheri and everyone who helped and donated cans this morning....big thoughts and hugs from us to you!!

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Mommy & Me

Mommy

She's going to keep everyone up to date about my progress. Isn't she the best mommy ever?

Mommy thought long and hard about my new website. She thought about protecting me and not putting my hospital pictures online. But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious. My mommy wants to make sure that other kids don't go through this and that their parents know what to look for. My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight. I love them so much!

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Diagnosis: May 9, 2013
Surgery: September 2013
Transplant: September 2013
STRICT ISOLATION UNTIL
January 2014
Radiation: November 2013
Antibody: January 2014
END OF TREATMENT
June 9, 2014
DFMO Trial: June 2014
(27 months of DFMO)
**FINISHED ALL TREATMENT
JULY 25, 2016

5 years from diagnosis!!
May 9, 2018

5 years from frontline!!
June 9, 2019

IN REMISSION: pending
(waiting for 5 year mark from maintenance).

Benign Tumor: June 2019

Sun, Jan 19, 2014

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