Camden's Crusade
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The best birthday.....

10/17/2013

 
Today, I had the best birthday!  I am thankful for my beautiful children, exceptionally fabulous husband, and my most wonderful family and my equally wonderful friends.  My day started out great, decorating the house for halloween with my two little munchkins.  We left for Boston's Children's Hospital at 12:15 and just got home now.  Camden had a follow up appointment that went perfectly.  His blood work is perfect.  They cannot believe (as Hartford) how great Camden looks.  I do not believe that I told you, but Cam's ng tube came out in the middle of the night on Tuesday.  We kept it out yesterday to see how he did eating.  They did NOT want it back in and we have surpassed that obstacle.  My birthday couldn't be any better.....a proud mama.  AND...Camden and Emma just gave me my present...beads for my bracelet (beads from the cancer bead program)...they may not be Pandora...but to me they are worth the world.   ~Much Love xoxo
Shannon Martens
10/17/2013 12:13:13 pm

Happy Birthday! You are an amazing mommy, God Bless you!
Prayers for you and your family.

Aunt Donna
10/18/2013 12:35:19 am

HAPPY BIRTHDAY JESS!!! I know you had a busy day in Boston. I talked to Mom and she said everything went well and that Ron was able to meet you there also. How great to be all together and get good news that is blood count is perfect and the feeding tube is out. This is the best birthday present any mom could ever get as well as the beads from the kids must be making your beautiful heart burst with joy and the love you have for them. HAPPY HAPPY BIRTHDAY SWEETHEART. XXXOOO

Gramma Nanc
10/18/2013 05:54:25 am

A Blessed Happy Birthday Jess !!!! today starts a Great year for you and your family with lots of Prayers, Love, and all wonderful things to come :)


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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