Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Thu, Sep 19, 2013

9/19/2013

 

A very special and heartfelt thank you to my mom and dad for their many weeks of caring for Emma during the last 5 months and upcoming 6 weeks!  Many of you know about the 24/7 dedication it requires to love and nurture a 2 year old!  We totally miss our sweet Emma Rose, but we are comforted knowing that she is being so well cared for.  Another special and loving thank you to Ron's parents and brother Matt for all of their assistance, guidance, support and desire to make this most challenging situation as smooth and positive as possible!  Without our family, dearest friends, and the endless support from all of you, we would be emotionally and physically in a different place.

Camden is enduring day 2 of his chemotherapy.  These 5 days of chemo will completely deplete every single cell in his body to the point that he WILL NOT be able to recover on his own (like with all previous chemo treatments).  The only way his body will recover is by reintroducing his stem cells!   This thought leads to many other scary thoughts, but as I glance across the room, I see an incredibly strong, determined, and admirable 5 year old boy with currently not a complaint in the world...taking on a battle much bigger than his size!  He is surrounded by legos, books, games, movies, snacks, and most importantly his two parents who love him more than words....

I do not fully understand what we will face over the next days, weeks, months, but we are ready and will see him through to his full recovery!  Thank You, God Bless You and as always, Much Love!!!

Gramma Nanc
9/19/2013 09:13:24 am

As always sending love, prayers& Hugs to one of the most special and strong familys i know !! we all will continue thru this with you , and know God will continue to carry you every step of the way!! :) stay strong Cam !

Jessica
9/19/2013 10:51:02 am

Thank you Gramma Nancy! Thank you and all of those help with Emma everyday, giving her the love and comfort she needs throughout the day! I cannot wait to hold her in my arms! Hug her a little tighter for me tomorrow! Love you!!!

Aunt Donna
9/19/2013 11:36:45 pm

I know how hard it must be to be away from Emma all these days but you don't have to worry. Mom and Dad are so amazing with her and she loves them very much. I am so happy that the first treatment went well and will continue to pray for the rest of the plan to go the same. Love you, jess. Hugs and kisses for Camden


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
    ​
    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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