Camden's Crusade
Follow Camden's journey and help him fight Neuroblastoma
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Tue, Jun 17, 2014

6/17/2014

 

(7:30p) We had a very long day. Camden did awesome with his MIBG scan AND his bone marrow biopsies. We should get the bone marrow results on Thursday. We pray for all negative results. We received the results on yesterday's CT scan which showed new areas of concern on his spine. : ( In search of correlating results, the MIBG did NOT reveal any spine lesions or acute changes (meaning that the abnormalities on the CT scan could be healing bone, scar tissue, changes in bone from radiation, etc.) HOWEVER, there was 1 area on the MIBG scan that leaves concern. : ( It was in his intestine. BUT this did NOT show on the CT scan. It could be build up of the MIBG isotope in his stool. (Praying that is all it is)!!! 2 tests done and both show different things, but it is good that they both aren't confirming an obvious problem. Can you imagine the emotional roller coaster? So where do we go from here? We need confirmation that neither concern is relapse. So we go for a PET scan. Please pray for Camden's spine and intestines. We have to wait and get our appointment. PLEASE GOD NO RELAPSE, please God heal Camden!! Please, good biopsy results, and a clear spine and intestines on the PET scan!!! Thank you everyone for your prayers and support!! Our journey continues...

Liz
6/17/2014 11:08:46 am

Continuing to keep Camden in my thoughts and prayers!

Gramma Nanc
6/18/2014 09:07:33 am

I believe God will continue to be with you thru this journey, Prayers that all test will have great results and Camden you will get stronger everyday and have a fun filled summer and good health from this point on :)


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    Picture
    Mommy & Me

    Mommy

    She's going to keep everyone up to date about my progress.  Isn't she the best mommy ever?

    Mommy thought long and hard about my new website.  She thought about protecting me and not putting my hospital pictures online.  But my mommy wants everyone to know that Neuroblastoma isn't just another illness, that it's scary and very serious.  My mommy wants to make sure that other kids don't go through this and that their parents know what to look for.  My cancer is very mean, and I'm scared, but I have my mommy - and daddy - to rub my belly and hold me tight.  I love them so much!

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    Diagnosis:  May 9, 2013
    Surgery:     September 2013
    Transplant: September 2013
    STRICT ISOLATION UNTIL
              January 2014
    Radiation:   November 2013
    Antibody:    January 2014
    END OF TREATMENT                
              June 9, 2014    
    DFMO Trial:  June 2014
        (27 months of DFMO)
    **FINISHED ALL TREATMENT
    JULY 25, 2016


    5 years from diagnosis!!
    May 9, 2018
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    5 years from frontline!! 
    June 9, 2019

    IN REMISSION:  pending
    (waiting for 5 year mark from maintenance). 

    Benign Tumor:  June 2019

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