Tue, Jun 17, 2014

(7:30p) We had a very long day. Camden did awesome with his MIBG scan AND his bone marrow biopsies. We should get the bone marrow results on Thursday. We pray for all negative results. We received the results on yesterday's CT scan which showed new areas of concern on his spine. : ( In search of correlating results, the MIBG did NOT reveal any spine lesions or acute changes (meaning that the abnormalities on the CT scan could be healing bone, scar tissue, changes in bone from radiation, etc.) HOWEVER, there was 1 area on the MIBG scan that leaves concern. : ( It was in his intestine. BUT this did NOT show on the CT scan. It could be build up of the MIBG isotope in his stool. (Praying that is all it is)!!! 2 tests done and both show different things, but it is good that they both aren't confirming an obvious problem. Can you imagine the emotional roller coaster? So where do we go from here? We need confirmation that neither concern is relapse. So we go for a PET scan. Please pray for Camden's spine and intestines. We have to wait and get our appointment. PLEASE GOD NO RELAPSE, please God heal Camden!! Please, good biopsy results, and a clear spine and intestines on the PET scan!!! Thank you everyone for your prayers and support!! Our journey continues...